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Message Board > Miscellaneous > Lichen planus?? ( Moderated by Deepika, EleanorSews, CynthiaSue)

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Lichen planus??
Another skin condition to add to the mix.
sewbehind
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sewbehind
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Date: 3/6/12 9:01 PM

I seem to be a walking encyclopedia of skin diseases. I just had a punch skin biopsy and have lichen planus. Does anyone else suffer from this? It itches. I know it is not communicable.
I have googled it but would like personal experience information if you have it.
Thanks,
Helen

ALFALFA
ALFALFA
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Date: 3/6/12 11:11 PM

I developed LICHEN SCLEROSUS on my perineum and labia and it was treated with steroid cream. the steroid i use very sparingly and it took away the itch immediately. But i continue to apply it once a week to keep it at bay. so far so good. I researched both Lichen planus and sclerosus and i cannot discern a great deal of difference between the two. Both can appear anywhere on the body and resolve spontaneously or continue long term and treated as needed with steroids. Hope you can find relief for yours as i know the itch can be unbearable.

------
alfalfa

sewbehind
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sewbehind
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In reply to ALFALFA


Date: 3/7/12 10:41 PM

Thanks, Alfalfa. Mine is more widespread, all over my torso and my wrists and legs. It does itch terribly. I do have an RX for the topical steroid cream. I shall try that.
Helen

moushka

moushka  Friend of PR
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In reply to sewbehind


Date: 3/7/12 11:14 PM

Hi Helen,

Hope the steroid helps. I have it in my mouth. It comes and goes according to my stress levels, although it's been better since I changed my diet. I use a cortisone ointment as sparingly as possible. It's pretty annoying at its worst. I can't imagine dealing with it all over. You have my sympathy, as does Alfalfa.

I'm always amazed at how many ways the body can find to express its dissatisfaction with something in modern day life. Lichen planus is an autoimmune illness. Mine has nearly disappeared since I gave up sugar and grains. I'd had it for nearly four years. YMMV, but it's worth a try.


Sue

moushka

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In reply to moushka


Date: 3/7/12 11:15 PM

P.S. Is there something about living in Ontario?

sewbehind
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sewbehind
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Date: 3/8/12 10:37 AM

Moushka, after seeing where you are from, I was wondering the same thing about living in Ontario!!!!
I did go on a low-carb grain-free diet and then because of another skin condition was given metronizadole for it and developed an allergic reaction to the medication. But, I had the lichen planus before that and it WAS after I got really lax about the low-carb, sugar free diet.
Which diet specifically are you following? Totally grain-free, no quinoia or wheat-free grains? The itch is terrible and heat intensifies the itch. I'm currently enjoying warm weather, not in Ontario!
Helen

ALFALFA
ALFALFA
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In reply to moushka


Date: 3/9/12 9:57 AM

The same thing occurred to me as soon as i saw we were both in Ontario. Does anyone else here in Ontario have either Lichen planus or Scleroid type? We can do our own number investigation albeit a straw poll.

------
alfalfa

Steffie
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Steffie
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Date: 3/10/12 7:30 AM

My father has suffered from Lichen Planus of the mouth for many years. He uses a Retin-A type ointment on his mouth to control it. However, after many years of having it in his mouth, the doctor is concerned that cellular changes may take place that could lead to oral cancer. He is now taking an oral medication that is used to treat Malaria. So far, the Lichen Planus is starting to respond -- he has been on the medication for around 4 months now.

Good luck with your condition -- I hope that it clears up quickly.

moushka

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Date: 3/10/12 11:08 PM

FWIW, my oral LP has gone into remission since I gave up the white stuff - sugar and flour, and all grains. I eat meat, poultry, fish, seafood, tons of veggies (except potatoes), eggs, dairy, fruit, nuts and berries. I decided to try the Paleo Diet after being referred to Mark's Daily Apple by mary in florida (I ignore all the supplement stuff). I started at the beginning of January and have lost nearly twenty pounds It's been painless. My LP cleared up within two weeks of stopping the grains and sugar. I had a tiny recurrence the day after eating birthday cake at my DGS's birthday party, which was all it took to convince me that the LP was in remission not cured, and diet-related.

My energy level has increased remarkably which is all I need to convince myself that this is the healthiest way of eating for me. I'm not rigid about it but I don't indulge in grains or sugar more than once every two or three weeks and then only if I'm caught in a social situation where it might cause offense or I would go hungry if I didn't eat what everyone else did.

I obviously can't speak from a medical viewpoint but I don't think you have anything to lose by giving the Paleo Diet a trial. It's a very healthy way of eating, imho.

to all of you struggling with LP. I hope a change in diet will help you.

Sue

sewbehind
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In reply to moushka


Date: 3/11/12 4:57 PM

Sue,
I think you may be on to something with a diet change. I had gone low carb and after I strayed, I got the rash. I didn't have or notice the rash before going low carb though.
Thanks for your helpful information.
Helen

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