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Good thoughts and/or prayers, please! Niece with CF in hospital ~ prognosis not good
SewVeryCreative Advanced FL USA Member since 8/23/07 Posts: 2604	Login to reply to this post Like this post Date: 11/22/10 5:23 PM Jen, my niece, 28, who was diagnosed with CF 23 years ago and has been awaiting a heart/lungs transplant has been moved from her "normal" hospital to a critical care one and will be there until a transplant can be found. She's been in her regular hospital for the past 5 weeks and is doing worse by the day. She's been moved to Shands in Gainesville, and won't be able to leave until she's received a transplant. Since that requires someone's death, it's a horribly sad thing to hope that someone who matches her dies so that she might live and go home to her husband. But we don't want to lose her, so we have no choice but to hope that a matching heart/lungs becomes available. We'll be leaving to see her on Wednesday (we want to make sure to give her time to settle in and stabilize) and we're seeing her with very real understanding that this might be the last time we ever get to see her. By Wednesday, she will have had surgery for her to accommodate a permanent trach-tube (from what I understand ~ which isn't a lot, it's all happening so quickly). As you can imagine, we're devastated by this ~ my husband more than you can possibly imagine as he just utterly adores her (as we ALL do). So, please, send her good thoughts and if you're so inclined, prayers, too, please. And please send good thoughts and prayers my SIL's way, too. She and her son-in-law are making a panicked 10 hour drive (while our niece went by medi-vac) to see her. Please forgive me for sounding so stupid ... I'm just ... dumbfounded. And upset. Thank you all so much. ------ ~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~ Connie in Panama City Beach, Florida :) "And these children that you spit on, as they try to change their worlds, are immune to your consultations. They're quite aware of what they're going through" ~ David Bowie, "Changes" http://www.imsewverycreative.blogspot.com
SewVeryCreative Advanced FL USA Member since 8/23/07 Posts: 2604	Login to reply to this post Like this post Date: 11/22/10 5:28 PM When I said that we're devastated by this, I really didn't mean to make it sound as though it's about US. Just mentioned that in the hopes that a few prayers/good thoughts could be sent my DH's way, too. Until our children came along 13 years ago, she was like a daughter to him. We only found out about how ill she is this morning, and it's been all he could do to not break down and cry. And the ONLY thing keeping him from breaking down and crying is the desperate need to be strong for his sister and for us. ------ ~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~ Connie in Panama City Beach, Florida :) "And these children that you spit on, as they try to change their worlds, are immune to your consultations. They're quite aware of what they're going through" ~ David Bowie, "Changes" http://www.imsewverycreative.blogspot.com
tgm and Kittys   Advanced Beginner WI USA Member since 3/8/10 Posts: 6940	Login to reply to this post In reply to SewVeryCreative Like this post Date: 11/22/10 5:29 PM Yes, I will pray for her ASAP.....and all the family who is traveling in this weather to see her. God Bless you Connie......+ Mary ------ I am a gal from Kalamazoo.... oh what a gal... smile.... It is in Michigan... la la la ...love that Glen Miller classic! Home of Abigail The Babykins & Lil Mittee kitty >^,,^ Be Still, & Know That I am, God + Please say a prayer for my poor feet. ... + ..one month down .. 6 weeks more to go.. They are healing. Thanks everyone for your prayers. 5/8/13 smile
poorpigling Advanced TX USA Member since 12/28/07 Posts: 10057	Login to reply to this post In reply to SewVeryCreative Like this post Date: 11/22/10 5:29 PM You have written about her before.. but this is terrible news.. of course you have our thoughts and prayers.. You DH too.. let him know we do care..
Sharon1952   Advanced MA USA Member since 7/1/08 Posts: 2643 Board Moderator	Login to reply to this post Like this post Date: 11/22/10 5:29 PM Praying SVC. ------ Sewing: A creative mess is better than tidy idleness. ~Author Unknown
Karla Kizer   Advanced FL USA Member since 4/8/02 Posts: 6976	Login to reply to this post Like this post Date: 11/22/10 5:36 PM I've been thinking of her for several weeks - and now I know why. She's been so tough for so long. She has my hopes for the best possible outcome. ------ “Never try to teach a pig to sing; it wastes your time and it annoys the pig.” -Robert Heinlein and Ann's father. Thanks for the reminder, Ann. Where are we going, and what am I doing in this handbasket? Matthew 25:40 (New International Version) The King will reply, 'I tell you the truth, whatever you did for one of the least of these brothers of mine, you did for me.'
MelissaB in WA Intermediate WA USA Member since 3/18/04 Posts: 1688 PR Weekend Volunteer	Login to reply to this post Like this post Date: 11/22/10 5:41 PM Oh how scary and terrible. I will be praying for her and all of your family. My sister's good friend has a son with CF, thankfully his meds seems to keep him in check most of the time (he's only 4). ------ "The way I see it, if you want the rainbow, you gotta put up with the rain." ~Dolly Parton Fabric sewn in 2012 ~ 20.5 yds Fabric sewn in 2012 ~ 50 yds Fabric sewn in 2011 ~ 65 1/8 yds Fabric sewn in 2010 ~ 112 1/2 yds Fabric sewn in 2009 ~ 137 3/4 yds Fabric sewn in 2008 ~ 218 3/8 yds Fabric Sewn in 2007 ~ 209 1/4 yds
sewbehind Beginner ON CANADA Member since 6/30/05 Posts: 783	Login to reply to this post Like this post Date: 11/22/10 6:24 PM Connie, You, your DH, your niece and your family are in my prayers. Let's hope all works out well. Helen
Restart06 Intermediate USA Member since 10/29/06 Posts: 2050	Login to reply to this post Like this post Date: 11/22/10 6:26 PM My heart and prayers go out to your niece, & you & family. Faith, may it be increased, and blessings. ------ There is no easy way! quote from my Grandfather Sharing is caring! Stash yds sewn in 2013 - 18 from quilting stash, with more cut out!!
fiddlinglizzie Advanced IL USA Member since 4/20/09 Posts: 466	Login to reply to this post Like this post Date: 11/22/10 6:36 PM Jen is at the top of tonight's prayer list, and there she shall stay. I'll be praying for her to get the most compatible transplant possible, and that it occurs quickly. I know that the power of prayer is beyond the power any human can comprehend. You and your family are also up there for prayers of healing, grace, strength and the overwhelming peace that you all will need in these trying days and weeks. We've got lots of power here, with all of us praying and sending those good thoughts to you, to Jen, your family and your friends.

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